Saturday, November 3, 2012

All is well

Allen is home from Iraq and all is well on the home front.
I got a new phone so I have been busy learning how to use it.

 
Next month I go for my check up with my Oncologist.   I feel pretty good with just a few lingering side effect.
 
My Onc  (yes he is handsome)
 
 
Happy Friday everyone, hope it is a wonderful weekend for you
 

Monday, October 22, 2012

Vinny is da man !

Yes I have an appointment with Vinny in 2013.

They will be my birthday tatoos and the end of my recon !  and the end of a long road for me,

To read more about Vinny and his awesome talent  read:

http://www.dailymail.co.uk/femail/article-2221423/The-tattoo-artist-transforming-mastectomy-patients-scarred-chests-incredible-dimensional-nipple-inkings.html

or visit his web site

http://vinniemyers.com/section/105672_Nipple_Areola_Tattooing.html

Tuesday, October 16, 2012

Another week

The weeks are flying by.
Allens trip home got delayed - by a week.  I was bummed about that, but I know where he is working there are lots of work issues going on.  But I will be so glad to see him.

Gracie has been busy with school - her courses are tough and she has been studing hard.   I have seen her grow up so much these last few months.

Me...well I got my last fill today, the results are totally awesome if I say so myself.   I will go back the first of December to to check every thing and make any adjustments.  Then the swap out surgery on the 17th.   Merry Christmas to me.

Health wise - I am having quite a bit of neurapthy in my hands and feet, it comes and goes, but I am ready for it to go.  When I did my lab work and upper GI test this month they found all my numbers were off/bad and I had severe acid reflux, who knew.   So anyway  I am now on 5 different medications to get everything under control and back to normal.  My doctor tells me this is normal for some one coming off chemo and steriods.  But 5 prescriptions is alot.  I would like to get it down to one, just my oral chemo, which I HAVE to take for 10 more years.

It is hard to believe that a year ago I was starting chemo and here today I am almost done with reconstruction.   My hair is dark brown and very curly, it is a whole new me for sure.  I still remember those dark days and every now and then I wonder if I am truly still cancer free.

I am invited to a WHIT HR reunion this weekend in New Orleans and I am really looking forward to seeing all of my former HR  coworkers.   The new company pretty much got rid of every one in WHIT HR, they wanted there own HR dept, so all of us have lots of catching up to do.  We all worked together for 18+ years so that is like family for most of us.

I have started to look at other HR jobs or jobs I may be interested in. I did take 2 civil serivce exams and passed them both, so maybe that will help.

But I really am enjoying this time and moving own with this wonderful life, I truly enjoy the little things and I learning to slow down just a bit.

Happy Fall -
Oh and here is my new favorite fall recipe

Pumpkin Crunch
1-15 oz. can pumpkin
1 cup evaporated fat free milk
1 cup sugar  (I use brown sugar - but you can use white)
1 tsp. vanilla
1/2 tsp. ground cinnamon
1 butter flavor yellow cake mix (super moist Betty Crocker)
1 cup chopped nuts (I use Pecans)
1 cup (2 sticks) butter, melted

Stir together first five ingredients. Pour into 9x13 lightly greased dish. Sprinkle cake mix evenly over pumpkin mixture. Sprinkle pecans evenly over cake mixture. Drizzle melted butter evenly over pecans. Bake 350 for 1 hour or 1 hour, 5 minutes. Let stand 10 minutes before serving. Top with whipped cream and nutmeg.

You can also sprinkle dark chocolate chips on top.
This is better than pumpkin or pecan pit !

:)

Thursday, October 4, 2012

Streams in the Desert

From Streams In The Desert : "I walked a mile with Pleasure, She chatted all the way; But left me none the wiser for all she had to say. I walked a mile with Sorrow, and ne'er a word said she; But, oh, the things I learned from her when sorrow walked with me."

Robin Roberts posted this on FB and I thought how true it is and how much you learn when you go thru something like this.

 I continue to learn so much on this journey, especially when it comes to true friendship and love.  Just a shout out to all of my friends who have been with me since day one of this journey.   So many of you are still with me today and helping me, pushing me along and keeping me positive.

(((much love))) to all of you.

And time for a happy pic

My Trixie is ready for the holidays. 

Tuesday, September 25, 2012

Another Day, Another Fill

I got another fill today - only 60 ccs this time.  I go back in two weeks for my final fill.  WHOO HOO !

Then the wait ! You need to have two months to heal before you swap out.     My swap out surgery is scheduled for Dec 17th !   Merry Christmas to me.

The results are looking great and I am pleased.  I take that back ..............the results ARE AWESOME....I love them...my scars are almost gone and I am perky and round.  Sorry if I am bragging, but hey I deserve these after all I went thru !

For those of you who do not know what a fill is (TMI ALERT) - it is when they inject my expanders aka  temp boobs with saline.  This is not for the weak of heart, the needle is LARGE  and it looks like a mini plunger....but the thing is - you feel a small stick, then nothing....until hours later when your muscles go into a spasm.  Sort of like a hard work  out at the gym that hits you the next day.   But it only lasts for a day or two.

Right now I am trying my best to sleep on my back (I am side sleeper) - because when I sleep on my side the expander edge digs in and it really hurts the next day.  Yes expanders hurt ...they are hard as rocks...but this will all change when I swap out in Dec.  But I am loving the results and that is what counts.

I am starting to think about work again....and what I want to do.
I will ponder that and get back to you.

Tuesday, September 11, 2012

Call me Dolly

I got another fill and this one hurt like hell......can you say stretch !
But the pain went away and my results look great so far.  I am so glad I decided to do this even if this recon is not for sissys !

What have I been doing ?   A little of this and a little of that....trying to power walk every day for 30-45 minutes weather permitting and doing things around the house that I have put off for the last 18 years. 

My sweet hubby went back overseas for work and I miss him so much.  He really was a great support for me this last month.   I have been driving his jeep while he is gone - and really enjoying it (sorry hun).  I hope to update my blog more while he is gone.


I also found a great recipe for  bread - yum...I have never been a baker before - so this was a surprise to me that it turned out to be delish and tonight I am cooking dinner for my SIL Judy who is going through a rough time.

AND

Please continue to keep my brother Brian in your prayers

I try to call him every few days -I found this online and thought it may be helpful for some of my readers

What to say to some one who is ill or in pain:

When people we care about are in pain, we want to offer words of encouragement, help ease their pain and motivate them to stay hopeful.
Unfortunately, our words of cheer can often be misinterpreted by those who live with chronic illness. Rather than feeling supported, our words can evoke the feeling of "she doesn't understand my life at all." This can permanently affect our relationships.


Here are some tips to keep in mind when talking to a friend living with an invisible illness.

 

What not to say:

You look so good!

Although this seems like a compliment, it's frustrating to an ill person. Although he or she may wish to look better than they feel, it seems as though you are saying, "You can't really be sick. You look fine to me." It invalidates a person's pain and symptoms.


You need to just stop thinking about it and get busy.

True chronic illness doesn't heal itself because of distraction. Although some people may dwell on the details of their illness, it can seem emotionally overwhelming when your life revolves around new symptoms, medication side effects, infections from a lowered immune system and the illness itself. He or she would likely love to do something fun, but fatigue and pain prevent it.

 

You should try this new health supplement. It can't hurt.

Actually, the supplement may be the exact opposite of what our body needs, and "natural" doesn't always mean "safe." People have good intentions, but the chronically ill are doing their best to navigate the road of Western medicine, alternative treatments and finding the best medical team.

I wish I had the luxury of being sick instead of having to go to work every day.

Most people want to be able to work, and being physically unable to do so can cause great depression. Those with illness realize they don't have the burden of getting up and going to work each day, but they also have medical bills that they may never be able to pay off, as well as fears of not being able to support themselves.

They don't have as much free time as you think. The medical appointments, pain and paperwork take a large portion of time.

Don't give in. You need to fight this illness.

Those who are ill are fighting their illness every day they wake up and get our of bed. And on the days they can't get out of bed, they are determined to still have a life that is full of joys and memories, special events and loved ones. By taking medication or trying a new therapy, they are not "giving in."

Illness is caused by stress. You just need to learn to cope better.

While illness can be exaggerated by stress, stress rarely is the source of the genetics that cause illness. Those living with an illness are doing the very best they can to cope, but comments like the ones above make them, well, stressed.

Here are some ideas on what to say:

I don't know what to say, but I care about you.

You don't have to try to fix it, and instead of saying, "I know exactly how you feel," an ill person would love it if you would just admit, "I don't have any idea what you are going through, but I am here if you need to vent."

Sometimes we just need one person who will listen and then we can move on to other topics.

If you need to cry, I've got plenty of tissues.

Every now and then we just need a good cry. Between the emotions certain medications cause, plus the stress on our marriages, careers and more, we occasionally need to cry.

Instead of being one more person who says, "Don't cry," tell your friend you will sit with her while she cries. It is an intimate gift that only true friends will offer.

I'm bringing dinner Thursday. Can you eat lasagna or chicken?

People who are chronically ill rarely have anyone bring them a meal or take their kids for a play date. Since moms and dads with illness do their best to keep up with life, they are seen out and about and they "look just fine." But you may never know how much they suffer silently in their home.

A meal for the family or babysitting the kids so parents can have a date night is a great way to provide support.

I am going to the store tomorrow. What can I get for you?

If you are running some errands, let your friend know in advance so he or she can write a short list. Being able to pick up heavy things can also be helpful, like a gallon of milk or laundry detergent. Bring them into the house and ask if you can put them away.

You are going through so much, yet you still have such joy. How do you do that?

If you see a friend who is coping well with his or her physical limitations, ask yourself what you could learn.

Rather than saying, "Thank goodness that isn't me; I could never do that," ask them what motivates them when they are in pain, or how they prioritize to make the most of limited energy. Where do they find hope when the circumstances look bleak?

Those who live with illness learn a lot about the ups and down in life and would love the opportunity to share the wisdom they have discovered.
 
 

Wednesday, August 22, 2012

I am getting there !

Went in for my first office fill today.  Whooo hoooo....

I have to admit I was worried - I think I have been reading to much info on the internet about how painfull this is...

The doc gave me 100cc fill...I did not feel the needle and the fill made my back hurt some ...but I am growing....the results look great.  I am very relieved.  Right now I have WONDER  boobs...hard as rocks !
They will soften out with time and when I do the implant exchange later this year.

I think I will go to Vinny in NOLA to get my tats as well   (google Vinny 3D  breast tattos)

Pain is relevant to me now.

Anyway my hubby made an observation that I need to share.   For years he has been begging me to get my ears pierced ..I have a pair of diamond earing wating for me if I do this....... and I always put it off.....I know how much it hurts and the healing.  He said with all you have had to go thru in the last year I find it funny you are afraid to get your ears pierced.

Needles dont scare me unless they are going in my ear lobes. (shudder)

Tuesday, August 21, 2012

What I am doing !

Most of my work friends ask me what I have been doing with my time.  When I am not going to doctor apointments this is a list of what I have done:

Clean and rearrange my large butlers pantry - a two day job - it looks amazing now btw.
Clean on various kitchen cabinets
Clean my guest room/move furniture - change linens...ready for company !
Clean (really clean) Gracies room and bathroom
Shop with my daughter for school stuff
Clean out my closet/drawers
Clean my living room and dining room
Buy new lamp and door matt - this took all day as I like to look for just the right piece
Brought various items to goodwill - ongoing
Made homemade dog treats for Trixie !
Send all my wigs/scarves/hats to a friend and Miles Perrett Cancer center


Things still on my to do list:
Refinish Desk ***** this is high on my list but I am waiting till it gets cool so I can do it in the garage)
Clean on linen closet
Clean out a few drawers in kitchen
Clean out garage and outside storage (will wait till it gets cooler)
Clean out front flower beds - I may pay some one to finish this. To hot and to many wasps and biting bugs.
Clean out chest with all my parents photos/paperwork - mail to various siblings and relatives.
Throw out old pots and dried up plants in the back of my house.
Clean Allens office - I think I need an atomic bomb for this

Of course I have been having fun with Gracie and enjoying time with her that I never had before...what a blessing that has been.

 Allen has been on days off for four weeks, so it has been nice to hang out with him.  We never had that relaxing kind of time before...and it has been nice.   We have done quite a bit of cooking...so my freezer is full to the brim.  He is leaving in a few more weeks so I will time to get some more things done.  But I will really miss him as I have gotten used to having breakfest and not having to rush off to work.  It is the little things for sure.

Medically - I feel better every day - I have to be careful not to overdo as my chest muscles will pay for it...looking forward to a 2nd fill on Wednesday and hope that the pain will be minimal.
I am also going in for an upper GI test on Monday....mostly because of the cancer gene in my family and the fact the all the meds I have to take have really messed with me.  

Say a few prayers for my brother Brian - he is fighting stomach cancer and the chemo is really kicking him.

So that is what I have been doing...

Saturday, August 18, 2012

I am healing

It has been 4 weeks since I left work.   I must say the rest/no stress has done wonders for me.

My neuropathy is almost gone with the wind.  I am loving it.   It does show me what stress does to you when you are trying to heal.  I really should have taken a long medical leave while I was doing chemo.     I think by working it took a toll on my health.     There are days when I  sleep 10 hours.   My body needs it.  I am lucky to be able to sleep with out drugs.     I can say I am healing.


I dont miss the work, but I do miss my Whit friends.  The Whitney I knew is gone, and I was very lucky to get the good package from Hancock so that  I can  heal and get my reconstruction.

Speaking of recon...it is not for sissys.  It has been painful I will not lie.   But what is pain, it is all relative when you think of what I have been thru this past year  
Tissue expanders feel like concrete blocks with hard edges.  When you move the edges dig into your muscle sending them into spasms. They give you meds for that, but really you dont need them.  I find it if do not over do it (lifting, bending, stretching) - that I dont need the meds. I love the results so far and that keeps me going, seeing the end in sight.

Allen has been home and it has been great to spend time together.  People ask me what have you been doing all this time.  It is hard to say, but shopping, cooking, reading,  and really just enjoying the small stuff that I never had time for while I was working.

It is a raining Saturday morning and I am enjoying a nice cup of coffee, no place to go or errands to run as I was able to do all those during the week.  Nice,

I know I will have to go back to work sooner or later - but it is nice to take the time to heal.



Saturday, August 11, 2012

1 YEAR

One year ago today I heard the words - you have cancer ! I had to recreate myself on so many levels, physically, emotionally, spiritually. I have a new hair do, new body, and soon to be a new job ! A heartfelt thank you to all my family and friends who got me to were I stand today. ♥ I could not have done it with out you. You life can change in an instant ! Count your blessing every day !

There are to many people to thank personally - but thank you from the bottom of my heart.  I love you all.

I am healing well from the recon surgery and go in for my 2nd fill in another week,   What a journey it has been !

Tuesday, August 7, 2012

Recon Part FOUR

Well I got the drains out today, doc said I was healing well and to lay low for the next few days...so the drain holes can heal...then in two weeks I get another fill - whoo hoo ! I am on the way.  He said I was doing well...I do feel great except for a little tired.  BUT I am loving the results so far...and I am wearing a sports bra again and it looks good.........so will continue to keep you updated.

I have been cooking quite a bit since it is the one thing I can do right now.  Tonight is chicken penne with sundried tomatoes and portebello mushrooms....I will post the recipe if it turns out.

Gracie and Allen have been great about doing all the heavy duty stuff (vaccum and laundry etc) - so I think that helps with the healing to.

I have really enjoyed being home with both of them the last two week and I have been able to spend some qaulity time with both of them... The stress edge has been taken off.

My good friends at Whit have been calling and texting, that helps to and makes me feel good (and missed)

I got my hair cut and colored Saturday - that was a big pick me up and I am feeling good about the new look.  I am not blonde anymore...so it is taking some getting used to !  I will post a pic as soon as I get one.


Friday, August 3, 2012

Recon 101 part 3

Well I am stuck with the drains for another week.   Arrrggggghhhh

They wont pull them untill the are draining less than 20ml in 24 hours.   I am about 35 ml.  I go back Tuesday for another look see - but I honestly have not seen a decrease yet.  UGH.  Iam so ready for them to come out...as the drains are really not comfortable.

I am running out of flowing clothes to wear and I am getting cabin fever.  I have to admit, I am a little bored.   I have been looking at jobs to see what is "out there"...but I know I need to finish the healing process with the reconstruction.

You can only watch so much TV and I cant do any lifting or bending etc yet.  So it is not like I can cook or organize or do anything useful around the house.   Thank goodness for my pc and a few games to pass the time.

The results look great so far, so I am getting excited about the whole process.  

On Sunday I am going to get a little trim and color (maybe) for my hair - surely that will lift my spirts.

I had to go off my diet during the recovery process, but should be able to start again next week or the week after.

Hope every one has a great weekend....take time to hug your loved ones and let them know how much they mean to you.

Sunday, July 29, 2012

Recon 101 - Part 2

What a difference a few days can make.   I am feeling much better today and the pain is gone.  I still have muscle spasms if I try to do to much.  I have trouble sleeping because I have to sleep on my back, but small price to pay in all this.

I go back to Dr Delatte (my plastic surgeon)  on Tuesday - I am hoping he can pull my drains at that time.    I have to say I am very pleased with the results so far, and this is just the beginning.   So I am really looking forward to the final results.  

Allen made it home from Iraq and I am looking forward to spending some time with him.

A very good friend and former coworker of mine passed away this week.  She was in her mid 40s and just a beautiful soul, inside and out.  They think it was a heart attack.  Rest in peace sweet Collette, so many people will miss you.  Another reason to take this day and make it wonderful.  Every day is a gift to us and we never know when we will go home.  Life is short - we need to enjoy !


More updates in a few days !

Wednesday, July 25, 2012

Recon 101 - part one

I will be blogging about my recon surgery.

First and foremost - this is no a surgery for sissys.
I would rather take 4 rounds of the red devil chemo than this.

I went in yeaterday...the doc comes in and marks me up.
I told him I want round and perky...he says we can do that...sort of like ordering off a menu.
Surgery is about two hours..

When I get out of surgery they go back and forth as to should I stay overnight or should I go home as the pain was pushing me over the edge and I was passing out. My right side is really hurting  and I feel like a have big square metal plates in my chest...that is what tissue expaders are. From what I can tell I have A cups right now, as they gave me a fill during surgery.  Once I heal I will go back to his office for another fill...I will continue to do this untill I am at my desired size - then will schedule another surgery to swap our the expanders and put in implants...but this is still a ways off...anywhere from 5 -10 months.


Finally I get  the release to go home...my mind can only concentrate on not throwing up from the pain. 

I did manage to sleep last night but is a drug induced sleep.  I wake up this morning to horrible muscle pain.  I cant stand up my myself and it is all I can do to feed myself...yes it is that bad.  Everything is in super slow motion.

Gracie has been taking care of me....and I could not do this with out her.

Go on take the money and run

Go on take the money and run !!!!

Whoo hoooooo – got my "early retirement"   package and I am happy J

Yes Happy ! I need some time to recoup from the past year and just catch up…this gives me the chance to really work on getting my health back.

As you might have guessed from a few of my previous posts I knew this was coming for awhile. No shock or sadness here. Working in HR tends to keep you in the loop on these sort of things, plus I have friends in high (as opposed to low) places !

Yes it is hard to leave after 18 years…but it was time. My work here is done as they old saying goes.

I leave the Whit – but not my Whit family, I have some great friends here, friends who literally carried me thru my illness and kept me floating, I will never forget that.

Whit was a great place to grow up !

It also feels good to know that on Monday night I sent my resume out to a few HR friends to let them know I would be looking for a new job in the near future and Tuesday I had a phone interview ! Divine intervention at work again. I put it all in his hands and follow the path.

BUT As most of you know I go in for my recon surgery on Tuesday and I really need to take some time off to recover from it…so I don’t know if the timing is right for this one.


Life rolls on….and so do I – keep rolling with the punches.

Saturday, July 21, 2012

*&^%$# cancer

My youngest brother was diagnosed with cancer this week...I encouraged him to be open and reach out for support as I understand the importance of this during a fight for your life.

Brian - you will always be my hero and the strong one, I know you can fight this....dont ever give up....I love you

Here is the letter my brother wrote to his friends :



Dear Friends and Relatives,
As some of you have already heard, in the last 3 weeks I went from going to my doctor with a persistent, uncomfortable belly ache to being diagnosed with stomach cancer. After lab work and a CAT scan last week, yesterday they did a lower intestine colonoscopy (all clear) and an upper GI endoscope check. My doctor found several small tumors in a group in my upper stomach. I have the most common type of stomach cancer (Gastric Adencarcinoma). I’m not in any great pain, but very bloated and very uncomfortable.

I can only eat small amounts of food without onset of nausea. If I over eat, it feels like I chowed down 2 Thanksgiving dinners non-stop !!

It is a late stage diagnosis (stage3/4), which my Doctor says is common for most stomach cancers since they don’t present early symptoms, and are not checked preventively like colon, prostate or breast cancer. My tumor had already gone through the wall of my stomach and was leaking cancer cell fluid into my abdomen (found last week in a parcenthesis-sp?....a long, ugly needle stuck in belly).

Today, I just got back from my Oncologist who I really like. He is only 5 min from my home. I go in next Thurs to St Elizabeth’s Hospital radiology for a heart scan so they know I’m strong enough for chemo, then again Friday for a porta-cath med-port insertion in my chest. Then I start chemo treatments Mon 30 July. Surgery and radiation are unlikely at this time I’m told.

Wonder how I’ll look and feel…… bald and vomiting. Oh freaking joy!

Thanks to all of you who have sent along your well wishes. I appreciate your support and prayers,

Brian Philipp

Another note:
A good friend of ours passed away last night....Rest in Peace Chris Guidry.
She fought for six months against lung cancer. My heart goes out to her son Zach who went to school with Gracie.

I am so tired of cancer....we must find a cure.  We must.

Thursday, July 12, 2012

Ding Dong the wig is dead

Ding Dong the wig is dead !  The wicked wig !

Haha – got my hair cut yesterday, very very short boy cut for now and very dark (I miss my blonde).
Blondes have more fun....I cant wait to be blonde again, but that will be a few more months !

But no GRAY so I am happy about that. I will be highlighting it when it gets longer

I have not done away with the wig – yet. I am close to it however. I still wear it to work, but I am almost over that…I suspect one day I will wake up and say “forget about it” and be done with that. It is so freaking hot and itchy during the summer. My sister in law and I went out to dinner last week and I went wigless and no one looked at me funny…..:)
I wonder if people can tell by looking at me that I had cancer...or it is just a bad hair day !

I think I know that once I go without it,   there is no turning back…so right time and the right place is what I am talking about.


I went to my pre-op today for my surgery on the 24th. I can’t wait to have my reconstruction….yes I am SCARED ! Really Scared. I know it will hurt and it is not an easy surgery ! BUT

I think I can I think I can I think I can….stay positive and stay strong.


Did I tell you I am on a lean and green diet ? I have lost weight….all part of my master plan for getting my health back. I am still sleeping a whole bunch and I am still fighting fatigue …but at least for the most part I am sleeping well…so I am glad about that.

The new meds have helped counter the side effects of Tamox – but not without a few side effects of their own….live and learn.

Work is stressful so that has its impact as well. I expect the next few weeks will bring some changes for me in that regard so stay tuned ! I did teach all of my classes this month and the students/employees gave me very high marks so I feel really good about that. And I was able to stand for 4 hours while teaching. I pushed myself…and I did it.  I pay for it later and I am totally wiped out and sleep for 10 hours after a day like that.

BUT

Every day I try to wake up in the right frame of mind and put a smile on my face and remind myself at how far I have come.

Wednesday, June 27, 2012

Time will tell

Writer's block.
"Cancered-out."*
Waiting for the next shoe to drop, medical or otherwise. ....
Nothing to say.
Given all of the above.....I could blog about it now, but it is a little premature.

I have got some serious stuff going on right now that I just dont know how to write about it.
But I will.

In time.....


Otherwise is a big clue !


PS....I saw Robin Roberts on TV while waiting in my doctors office today....She had a big smile on her face...but I could already see her illness taking its toll on her.  What a role model she is.

I did see a new doctor today....one who is a cancer survivor.  I felt a BOND.....he gets it - he gets me and what I am going through right now ! 

Saturday, June 16, 2012

Life moves on

Life moves on and so do I !
I have been really struggling at work..............the fatigue is overwhelming along with the side effects from the Tamox.   I have to teach a class next month...this means standing for about 3 hours more or less...I told my boss I did not think I could stand the whole time.....sigh !!!  I have to bring them a note from my doctor...........sigh.   Ok !  moving on !

Happy Birthday to me !!!  The first phase of my  recon surgery is scheduled for July 24.  My birthday.

I am happy, scared, overwhelmed and a mix of emotions over this.
I am trying not to read all the horror stories on the internet (The pain, the pain)
I keep telling myself, no one writes about the good stories right ? 
I hope to have new "boobs" by Christmas !

Good Things from Chemo:  my skin looked the best it has in many years; I learned I could not eat  and not starve; I found out how much people in my life cared about me; I got a lot better at applying makeup; I found out that I'm tougher than I thought I was.
Bad Things from Chemo: everything else.

They forget to tell me that I will suffer from the side effects of chemo for months (years ?) after.
Look at Robin Roberts...five years later...chemo screwed with her and it took five years to catch up !

I don't know if or when I'll get past stressing over every new test or wondering if every new symptom is cancer, but I'm hoping I will. Right now, I'm thankful to be alive and don't have to wear a wig :)
My hair is coming back dark and curly !!!  I was going to color it blonde, but I think I will wait a bit...it is kinda growing on me ...in more ways than one.

Friday, June 15, 2012

A good read from CNN

Are we prepared for 18 million cancer survivors?

An estimated 13.7 million Americans with a history of cancer were alive on January 1, 2012, according to a new report from the American Cancer Society (ACS) in collaboration with the National Cancer Institute. Researchers expect the number of cancer survivors to rise to 18 million by 2022.
The report, published Thursday, says currently one in three women and one in two men in the U.S. will develop cancer during their lifetime.
“Increases in the number of individuals diagnosed with cancer each year, due in large part to aging and growth of the population, as well as improving survival rates, have led to an ever-increasing number of cancer survivors," the authors of the report write.

For example, the 5-year survival rate for breast cancer improved from 75.1% in 1977 to 90% in 2007. And 5-year survival rates for childhood cancers are at 82.5%, an increase of more than 24% since the mid-1970s. Nearly half of all cancer survivors are 70 years or older.
Unfortunately, doctors may not be prepared to deal with the problems cancer survivors face.
"More can certainly be done [in terms] of what the needs are and how they can best be met," study author and ACS epidemiologist Carol DeSantis said. "ACS assesses the gaps in resources and finds ways to fulfill those needs."
Long-term effects from the treatment, including chemotherapy and radiation, and from the cancer itself can be debilitating. For example, cancer survivors like Robin Roberts, can face blood disorders years after they go into remission. Others deal with osteoporosis from the damage chemotherapy inflicts on a body's bone marrow.
Treatment can also cause cardiovascular problems, cognitive defects and muscle pain.
Just as pressing may be the psychological effects for patients who fear the recurrence of their cancer, or who realize the higher risk of being diagnosed with a secondary cancer.
“Survivors are relieved to have completed treatment, but may need to make physical, emotional, social, and spiritual adjustments to find a 'new normal,'" the authors write

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